SCT screening data flows to the National Congenital Anomaly and Rare Disease Registration Service – Public Health England

Flowchart showing the sickle cell and thalassaemia (SCT) screening newborn outcomes project pathway. The document includes actions for: babies with a newborn blood spot screen positive result clinical presentation of an affected child or infant

Haemoglobinopathy Coordinating Centres Engagement Report – NHS England

Engagement report on the service specification for specialist haemoglobinopathy co-ordinating centres to support the provision of specialist and non-specialist haemoglobinopathy services to adults and children and to provide expert opinion and management for complex patients.

Specialist Haemoglobinopathy Teams Engagement Report – NHS England

Service specification engagement report for  haemoglobinopathy coordinating centres to support the provision of specialist and non-specialist haemoglobinopathy services to adults and children and to provide expert opinion and management for complex patients.

Haemoglobinopathy Coordinating Centres Service Specification – NHS England

Service specification for  haemoglobinopathy coordinating centres to support the provision of specialist and non-specialist haemoglobinopathy services to adults and children and to provide expert opinion and management for complex patients.

Specialist Haemoglobinopathy Teams Service Specification – NHS England

Service specification for specialist haemoglobinopathy teams to support the provision of specialist and non-specialist haemoglobinopathy services to adults and children and to provide expert opinion and management for complex patients.

Information for patients on the Infected Blood Inquiry – Public Health England

The Infected Blood Inquiry (IBI) is a public inquiry which will examine the circumstances in which patients treated by the NHS in the 1970s and 1980s received infected blood and/or blood products; the impact on their families; how the authorities

Information for GPs on the Infected Blood Inquiry – Public Health England

The Infected Blood Inquiry (IBI) is a public inquiry which will examine the circumstances in which patients treated by the NHS in the 1970s and 1980s received infected blood and/or blood products; the impact on their families; how the authorities

Donor Selection Criteria Report (2017) Version 2 – Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO)

This report from The Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) recommends reducing a number of ‘deferral periods’, the time between engaging in certain behaviours and donating blood, tissue or cells. The report explores issues including:

Clinical Commissioning Policy: Susoctocog alfa for treating bleeding episodes in people with acquired haemophilia A (all ages) – NHS England

This policy document outlines the arrangements for funding of treatment for bleeding episodes in people with acquired haemophilia A.