This guidance has been developed with the occasional trauma team in mind, for example, surgeons in a trauma unit who need to treat a deteriorating P2 patient, or a P1 patient who has been conveyed to the trauma unit, during
Royal College of Physicians report that highlights and challenges professional reluctance to engage in conversations with patients about uncertainty, treatment ceilings, resuscitation status and death. It offers some ‘mythbusters’ to get physicians thinking and signposts to tools and educational resources
Report that highlights five areas of particular concern, where many children and their families have limited access to: children’s palliative care out of hours and at weekends short breaks for respite age-appropriate palliative care and smooth transitions to adult services
The Guide to Children’s Palliative Care is an essential resource for all those with an interest in planning, commissioning and delivering services and care for babies, children and young people with life-limiting and life-threatening conditions, and their families. This guide
Compassion in Dying report that report that used Freedom of Information requests to reveal a mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care
Report that finds for patient experience overall ratings continue to improve, with year on year increases in reported positive experience. Patients also reported more positively on areas including involvement in decisions about care and treatment, and being treated with dignity
The learning from deaths national guidance is for NHS trusts on working with bereaved families and carers. It advises trusts on how they should support, communicate and engage with families following a death of someone in their care. Included is information
Welsh Assembly Cross Party Group Hospices and Palliative Care report finding people with terminal illnesses and life-limiting conditions in Wales – especially dementia, heart failure and neurological conditions – face a range of barriers in accessing hospice and palliative care.
This guideline covers diagnosing, monitoring and managing any type of primary brain tumour or brain metastases in people aged 16 or over. It aims to improve diagnosis and care, including standardising the care people have, how information and support are
The English Longitudinal Study of Ageing (ELSA) is an invaluable source of information on the economic, social and health circumstances of the older population. This report provides an introduction to the ELSA EoL data, the quality of the data, the
Facing the Future: Standards for children in emergency care settings document provides healthcare professionals and service planners with clear standards of care that are applicable to children in urgent and emergency care settings. They are intended to be motivating, meaningful and measurable
Every year in England and Wales over 500,000 people die. For three-quarters of these people, death does not come suddenly. Instead, dying is a process that may take days, weeks or even years, involving a progressive decline in functioning and frequent interactions
Macmillan Cancer Support report looking at Advance Care Planning (ACP) – or Anticipatory Care Planning in Scotland. A term used to describe conversations between a person and those involved in their care about their future wishes and care preferences. A person who is
Macmillan Cancer Support report revealing broad variations in the ratio of patients to specialist cancer nurses and warns that such wide variation may mean that patients may not be getting access to badly-needed specialist care. While the workforce as a whole has
This debate pack outlines the progress so far in implementing the Achieving World-class Cancer Outcomes: A Strategy For England 2015-2020: Report of the Independent Cancer Taskforce strategy and provides statistics on survival rates and the NHS cancer workforce. Finally, this paper pulls
National Strategy for Cancer that emphasises the importance of earlier diagnosis and of living with and beyond cancer in delivering outcomes that matter to patients. The report recognises that no two patients are the same, either in their cancer or their healthand care needs.
Case study of the transformation of existing palliative care services into enhanced supportive care (ESC). . The multi-disciplinary ESC team covered all patients’ needs. It had strong financial support and worked with the oncology team, so that patients could access the ESC team at any stage
Macmillian Cancer Care report that looks at the experience of cancer patients’ final months and years. It finds that cancer patients approaching the end of their life face repeat emergency visits and the situation is worse for patients who are
This report sets out how the National End of Life Care Programme Board is delivering personalisation and choice in care for people at or near the end of life.
This quality standard covers end of life care for infants, children and young people (from birth to 18 years) who have a life-limiting condition. Life-limiting conditions are those that are expected to result in an early death for the person. It