Get it on time: the case for improving medication management for Parkinson’s – Parkinson’s UK

Parkinson’s UK report that highlights problems that people with Parkinson’s disease can face receiving their medication when having a hospital stay. These findings include: nearly two thirds of people who have Parkinson’s don’t always get their medication on time in

Regulation 28: Report to prevent future deaths: Gladys Sayles – Courts and Tribunal Judiciary

Date of report: 26 July 2019 Ref: 2019-0253 Deceased name: Gladys Sayles Coroners name: Martin Fleming Coroners Area: West Yorkshire (West) Category: Hospital Death (Clinical Procedures and medical management) related deaths This report is being sent to: Leeds Teaching Hospitals

Importation of plasma and use of apheresis platelets as risk reduction measures for variant Creutzfeldt-Jakob Disease – Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) Paediatric Components Working Group (PCWG)

Report from SaBTO’s Paediatric Components Working Group looking at whether scientific evidence supports updating specific vCJD risk reduction measures.  This document reports on the findings of the Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) Paediatric Components Working

RightCare: Progressive Neurological Conditions Toolkit – NHS RightCare

People with progressive neurological conditions are experiencing delays in diagnosis and treatment, fragmented and uncoordinated services, limited availability of neurospecialist rehab and reablement and a lack of psycho-social support. This NHS RightCare toolkit provides expert practical advice and guidance on

Guidance on the use of cannabis‐based products for medicinal use in children and young people with epilepsy – British Paediatric Neurology Association

Interim clinical guidance for clinicians in the use and prescription of cannabis‐based products for medicinal use in children and young people with epilepsy. The BPNA has been asked to highlight the key questions specialist clinicians should address before considering prescribing

Transforming elective care services neurology: Learning from the Elective Care Development Collaborative – NHS England

This handbook is for commissioners, providers and those leading the local transformation of neurology elective care services. It describes what local health and care systems can do to transform neurology elective care services at pace, why this is necessary and

Neuro patience: still waiting for improvements in treatment and care – The Neurological Alliance

Neurological Alliance report presenting the findings of the 2018/19 National Neurology Patient Experience Survey. The report covers three main themes – accessible, personalised and holistic care and support (which includes social care, mental health and financial security). Overall, the 2018/19

Personalised care for veterans in England: A guide for clinical commissioning groups and local authorities – NHS England

This document sets out a new personalised care approach for those veterans who have a long term physical, mental or neurological health condition or disability.

Practical guidance supporting the 2019-20 CQUIN: Six month reviews for stroke survivors – NHS England

Supporting guidance for the Community CQUIN applicable for providers of stroke community services. Outlines how to undertake the six month post stroke reviews and record these on SSNAP (the Sentinel Stroke National Audit Porgramme), supporting personalised stroke care and ongoing

Armed Forces personnel in transition: Integrated Personal Commissioning for Veterans (IPC4V) – NHS England

This document provides a framework for effectively planning and delivering personalised care in line with the health commitments of the Armed Forces Covenant.

Neuropad for detecting preclinical diabetic peripheral neuropathy: Medical technologies guidance [MTG38] – NICE

The case for adopting Neuropad to detect preclinical diabetic peripheral neuropathy is not supported by the evidence. Neuropad detects sub-normal sweating in patients with diabetes but the clinical importance of this in current NHS care pathways is poorly defined. There

The Vest for delivering high-frequency chest wall oscillation in people with complex neurological needs: Medtech innovation briefing [MIB159] – NICE

The technology described in this briefing is The Vest. It is intended to deliver high-frequency chest wall oscillation for clearing airways. The focus of this briefing is its use in adults and children with complex neurological needs, such as cerebral palsy and

Children with long-term conditions in the North West: Emergency hospital admissions for asthma, diabetes and epilepsy 2008/09 – Liverpool John Moores University Centre for Public Health

The North West has the highest child emergency hospital admission rate for both asthma and epilepsy and the second highest admission rate for diabetes in England. This report details child emergency hospital admission rates, emergency bed day rates and average

Lutetium (177Lu) oxodotreotide for treating unresectable or metastatic neuroendocrine tumours: Technology appraisal guidance [TA539] – NICE

Evidence-based recommendations on lutetium (177Lu) oxodotreotide (Lutathera) for treating unresectable or metastatic neuroendocrine tumours in adults. Lutetium (177Lu) oxodotreotide is recommended, within its marketing authorisation, as an option for treating unresectable or metastatic, progressive, well-differentiated (grade 1 or grade 2), somatostatin receptor-positive

A Health Needs Assessment for Children and Adults with Neurodevelopmental Conditions in Liverpool – Liverpool John Moores University Public Health Institute

A rapid health needs assessment for children and adults with neurodevelopmental conditions including attention deficit hyperactivity disorder (ADHD) and autistic spectrum disorder (ASD). This report includes a review of the literature which details: risk factors, prevalence estimates and a summary

CPG Hospices and Palliative Care: Inquiry Inequalities in access to hospice and palliative care – Cross Party Group Hospices and Palliative Care

Welsh Assembly Cross Party Group Hospices and Palliative Care report finding people with terminal illnesses and life-limiting conditions in Wales – especially dementia, heart failure and neurological conditions – face a range of barriers in accessing hospice and palliative care. 

Brain tumours (primary) and brain metastases in adults: NICE guideline [NG99] – NICE

This guideline covers diagnosing, monitoring and managing any type of primary brain tumour or brain metastases in people aged 16 or over. It aims to improve diagnosis and care, including standardising the care people have, how information and support are

Improving care for people with MS: the potential of data and technology – Nuffield Trust

This report for the MS Society by the Nuffield Trust examines four key areas in the lives and care of people with MS where the potential of data and technology could be harnessed to make a significant difference: Helping people